Tag Archive | illness

Immortal Life of Henrietta Lacks (non-fiction)

Jul23

Shhh… another Sneak-In Saturday. This book zoomed and leaped onto award and bestseller lists before I could get it here, but you really must read it.

The idea of “informed medical consent” was rather different sixty years ago, as were medical research techniques.

Henrietta Lacks thought that she was only being treated for cervical cancer.
She had no idea that doctors had taken cell samples for later use.
And the rest is medical history…
**kmm

Book info: The Immortal Life of Henrietta Lacks / Rebecca Skloot. Random House, 2010 (hardback), 2011 (paperback) [author’s website] [publisher site] [book trailer]

Recommendation: When Henrietta Lacks was treated for cancer in the “colored” ward of the hospital in 1951, doctors took cell samples for research without telling her. In the laboratory, those cells became the first self-sustaining (“immortal”) human cells, enabling countless experiments with medicines and therapies.

The Johns Hopkins Hospital researchers shared those HeLa cells with other scientists, who used them to develop vaccines against polio, catalog the effects of radiation on humans, and make advances toward in vitro fertilization and gene mapping. Eventually, HeLa cells were grown in medical factories, becoming a multimillion dollar industry as researchers worldwide used them.

Yet Henrietta’s family didn’t know that her cells were being used for anything; they could only grieve at her death, as she left behind a large African American family, moved not so long before from their small tobacco farm in Virginia to work in Baltimore for better wages.

More than 20 years after HeLa began growing in the lab, Henrietta’s children learned that some part of their mother was still alive. Poorly educated, they thought perhaps that scientists could bring their mother back to life or that the HeLa cells sent on lunar missions meant that she was now living on the Moon. After those first, confusing interviews in the 1970s, the Lacks family refused to talk to any reporters or researchers.

Finally in the late 1990s, the writer of this book and Henrietta’s youngest daughter began investigating the family’s history and the amazing tale of how HeLa cells enabled so many discoveries in medicine and science.

Did her family ever receive any benefit from Henrietta’s cells? No. Can her descendants afford health insurance today? No. Have the laws changed so that patients have more control over what their cells and tissues are used for? Yes, but…

A fascinating science detective tale threaded with questions of medical ethics and wrapped up in family history, The Immortal Life of Henrietta Lacks reminds us of the human side of scientific advancement – an award-winning story, well-told.

(One of 5,000 books recommended on www.abookandahug.com) Review copy courtesy of the publisher.

Plain Kate, by Erin Bow (book review) – lose her shadow, lose her life?

Jul18

When your family is all you have, what can you do when they are gone?
How do you decide who you can trust?
What happens if you make the wrong decision?

On this Mysterious Metaphysical Monday, we find young Kate orphaned and alone in a superstitious world. Her fine woodcarving skills are ignored by the Guild, yet sought-after by the townsfolk who want charms against evil. But being different is more than just a bit dangerous here – it could be deadly.

Desperate to escape, Kate bargains with a mysterious stranger and finds herself on a perilous journey with a talking cat, a dwindling shadow, and frightening glimpses of the past that might be the future.

A haunting book that will have you checking your shadow now and again, it’s recently been released as Wood Angel in the United Kingdom.
**kmm

Book info: Plain Kate / Erin Bow. Arthur A. Levine Books, 2010. [author’s website] [publisher site] [book trailer] Review copy and cover image courtesy of the publisher.

Ny Book Talk: Skilled as a woodcarver, Plain Kate lost her place at the workshop when her father died, and the guild gave it to another. No mother, no kin, Kate was alone in the world at age 12, a world of superstitions and talismans and witches burned.

When mysterious Linay appears in the village, few trust the albino minstrel. He promises Kate “the wish of her heart” in exchange for her shadow, and when rumors swirl that her carving skills are witchcraft, she takes up Linay on his offer.

Suddenly, Kate has a talking cat as she travels up the river to escape the village. She and Taggle meet up with a clan of performing Roamers, with their bright wagons and acrobatic graces, and are allowed to travel with them until danger comes near and all are threatened.

As Kate’s shadow slowly disappears day by day, the fever which struck down her father and many others begins to make its way up the river, too.

Why did Linay need her shadow?
How can a talking cat be Kate’s dearest wish?
Will the Roamer clan and her friend Drina survive the fever and the witchburnings?
Are real witches darkening the daytime sky and sending frost across the summer day?

An exciting and suspenseful tale of yearnings and journeys, of superstitions and the supernatural! (One of 5,000 books recommended on www.abookandahug.com)

Positively (fiction)

Jul12

How can anyone else understand what Emmy is going through?
Born HIV-positive, losing her mother to AIDS, struggling to make it through school and the move to her dad and stepmom‘s house…

Thankfully, there really are places like Camp Positive where young people like Emmy can learn to cope with HIV, as well as camps for kids with asthma or diabetes. The author is donating proceeds from sales of Positively to the Elizabeth Glaser Pediatric AIDS Foundation.

Come to Camp Positive with Emmy – you’ll be glad you did!
**kmm

Book info: Positively / Courtney Sheinmel. Simon & Schuster, 2009. [author’s website] [publisher site] [book trailer]

Recommendation: AIDS took her mother, leaving 13 year-old Emmy alone and HIV-positive. Well, her father and stepmother wanted her, but did she really want to live with them? Especially with a new baby on the way?

After Mom’s funeral, being at junior high with Nicole was mostly the same, but it was really hard at Dad and Meg’s house with different rules and someone else’s favorite foods. Who wouldn’t get mad and lash out?

Emmy wasn’t happy when they sent her to Camp Positive for girls living with HIV – a whole summer away from her friends, and off in the woods! How will Mom’s spirit know that she’s away from their hometown? Can Emmy get used to sleeping in a cabin with other people? How many summers will she have in her life, even with all the new medications?

Explore the woods and worries with Emmy and the Camp Positive crew, learning to live well every day and be positive in more ways than they ever dreamed. (One of 5,000 books recommended on www.abookandahug.com) Review copy courtesy of the publisher.

This Thing Called the Future, by J.L. Powers (book review) – tradition, love, AIDS, hope in South Africa

Jun15

Tomorrow is South Africa Youth Day, celebrating the 1976 youth protest in Soweto. Khosi’s mother and father were among the many who fought for freedom from apartheid, the South African government’s brutal racial discrimination policy.

Although apartheid has crumbled, Khosi and Zi are growing up in an era of changes, as traditional beliefs clash with Christianity, and new menaces stalk the villages and cities of Africa. “The disease of these times” Khosi calls it – HIV and AIDS leaves many children orphaned.

I visited with author J.L. Powers at TLA, and she told me of life in today’s South African townships, the funeral bells, the push for education. Reading this strong book, we can believe that Khosi will stay in school and find a way to balance her beliefs, avoid threats to her health, and see a bright future.
**kmm

Book info: This Thing Called the Future / J.L. Powers. Cinco Puntos Press, 2011. [author’s website] [publisher site] [book trailer]

Recommendation: Khosi wants to do well in school, keep her family safe, escape AIDS, “the disease of these times” in South Africa. Life can be so confusing at 14, as she prays to the great God-in-the-sky at the church and also honors her ancestors with traditional ceremonies, uses herbal cures from the sangoma as well as modern medicines from the clinic. Born on the day that her grandfather died, Khosi often has vivid dreams – are they merely warnings from her ancestor or dire predictions of the future?

She and her little sister live with their grandmother in Imbali township, while her mother teaches in another city, coming home on the weekends; their father lives so far away that they see him only on holidays. Khosi wishes that Mama and Baba were married, but during the struggle for Liberation who could afford the lobolo, the bride price?

A widowed neighbor accuses Mama of stealing her late husband’s money, a drunken man near Gogo’s house follows Khosi and Zi home from school every day, and the witch woman calls out that she will take Khosi’s spirit! How Khosi wishes she could just ignore these things and plan her future as someone who heals or dream about her crush on Little Man at her school …

When Mama comes home, sick and skinny and weary, Khosi fears that the neighbor and the witch have cursed her family. What can she do?

Author J.L. Powers’ time in South Africa has given her great insight into the lives of its girls and women, ever-shadowed by HIV, neighborhood violence, and the struggle to rise above poverty, as she brings us a powerful story that still holds hope for This Thing Called the Future. (One of 5,000 books recommended on www.abookandahug.com) Review copy and cover image courtesy of the publisher.

Trickster’s Girl, by Hilari Bell (book review) – nanotech, ley lines, unbalanced Earth

May7
book cover of Trickster's Girl by Hilari Bell published by Houghton Mifflin

Ley lines and legendary figures from Native American/First Peoples mythology.
Bioplague and a Gaia/Earth that can no longer heal itself.
Our potential future, Kelsa’s world, so much at stake.

Read this first book in the Raven Duet outside, under a real, living tree.
**kmm

Book info: Trickster’s Girl / Hilari Bell. Clarion/ Houghton Mifflin Books for Children, 2011. 268 pg [author’s site] [publisher site] Review copy and cover image courtesy of the publisher.

My Recommendation: As Kelsa is burying Dad’s ashes in the scrap of forest left near the city, a young man with no ID chip approaches her, wondering why she doesn’t believe in magic. Ha! Her father just died of cancer, that curable everyday problem, worrying about the bioplague dropped by terrorists in the Amazon rainforest, the antidote that didn’t work, the deforestation of whole countries that followed. Magic in a world of aircars and compods and microchefs?

This isn’t hocus-pocus magic, Kelsa finds out, as Raven transforms himself into a fish, a bird, right before her eyes. He describes how humankind’s demands have blocked the ley lines of spirit, keeping the earth from healing itself. Now forests can’t fight off the bioplague and humans can’t fight off curable cancers and worse natural disasters loom ahead.

Kelsa has a flicker of magic in her soul, and Raven needs her help to unblock key nexus points on the ley lines from Utah to Alaska with a Native American artifact. But first they have to rob a museum to get it, then slip away from the police without worrying her mother.

Surviving in the wilderness as her dad taught her, escaping from agents of spirits who’d rather erase humanity and start earth anew, riding bikes and motorcycles over mountain trails toward nexus points, crossing boundaries without passports…
Can Kelsa really help the earth heal itself?
Is Raven the Trickster telling her the whole truth?

This is the first book of Bell’s new series based in a high-tech, high-security future United States whose only hope is the magic recounted in ancient folklore. (one of 5,000 books recommended on www.abookandhug.com)

Last Summer of the Death Warriors, by Francisco X. Stork (book review) – is growing up harder than dying young?

May5

book cover of Last Summer of the Death Warriors by Francisco X Stork published by Arthur A Levine BooksWhat does life mean when you know – without any doubt – that you are going to die way too young?

Is there even any sense in trying to live a good life when the specter of Death haunts your breakfast, lingers in the corners of your backpack, rustles the leaves of the tree you can no longer climb?

Two teenage guys try to find the balance – D.Q. knows he’s dying fast, Pancho might not care enough to make it through the summer himself…

Francisco X. Stork says on his blog that he concentrates first on being a good writer, then on being a good Latino writer. I’d say that he succeeds at both. Check out his Marcelo in the Real World, too.

Book info: The Last Summer of the Death Warriors / by Francisco X. Stork. Arthur A. Levine Books (Scholastic), 2010. 352 pgs. [author’s website] [publisher website]

My Recommendation: His sister dead just 3 months after their widowed father’s death – Pancho had promised to take care of Rosa, sweet Rosa, with her child’s mind in a young woman’s body. Why aren’t the police looking for the man who was with her when she died of “unidentified causes, no foul play”? At 17, Pancho is ready to find that man and make him pay for Rosa’s death.

But he’s not allowed to live alone at 17, gets kicked out of a foster home for fighting, and finds himself at St. Anthony’s orphanage, across town from his family’s trailer in the New Mexico desert where he watched the sunsets and worked with his father. Everyone works at St. Anthony’s; Pancho will help D.Q. whose cancer treatments have finally put him in a wheelchair.

D.Q.’s mother couldn’t handle his dad’s death several years ago and brought him to St. Anthony’s for the summer while she recovered. But summers and years went by with her hardly contacting him, until the cancer hit 6 months ago. Now she’s taking charge, ordering experimental treatments, but her son wants none of it.

Now D.Q. is writing the Death Warriors’ Manifesto, about how a true death warrior recognizes his someday-death and therefore lives every day till then in order to make a positive difference. Explaining that to everyday, non-philosophical Pancho is another way that D.Q. keeps going through the chemo treatments. Piecing together the clues leading to the man who was with Rosa is what keeps Pancho going. Seeing lovely, caring Marisol at Casa Esperanza during the chemo makes their lives more worthwhile.

Will Pancho find the man and avenge Rosa’s death?
Will D.Q.’s mother let him go back to St. Anthony’s after chemo?
Can both young men live like true death warriors?

A great story of friendships and choices, of really living versus just being alive. (one of 5,000 books recommended on www.abookandahug.com) Review copy and cover image courtesy of the publisher.